From the BBC
“Ukraine
orphanages: Children tied up and men in cots”
(Vasyl, who
was sent to an institution when he was five years old, has been tied to this
bench for hours)
Vasyl Velychko
has been tied to a bench on a baking hot day for hours, but no-one hearing his
screams will untie him. The 18-year-old is one of thousands of disabled people
living in Ukraine's orphanages. BBC News has gained access to five institutions
and found widespread abuse and mistreatment - including teenagers restrained
and adults left lying in cots for years. Human rights investigators say Ukraine
should not join the European Union until it closes these institutions. Before
the war with Russia, the Ukrainian government said it would reform the system.
Readers may
find some details and images in this report distressing.
("A
parent's heart is always with their child," says mum Maryna - pictured
with Vasyl and his dad, Illya)
Vasyl, who has
epilepsy and learning disabilities, lives in an orphanage on the outskirts of
the city of Chernivtsi in south-west Ukraine. The teenager is wearing a nappy.
He rocks back and forth, intermittently giving out a long high-pitched scream,
but the staff don't react. They are tired, overworked and it is clear that it
is easier - and accepted - to keep an eye on the children and young people by
restraining them. An influx of evacuees from the east has put further pressure
on the system, but the ways people like Vasyl are treated in Ukraine's
institutions long pre-date the Russian invasion.
Next to Vasyl
lies another young man. His hands are bound together with the sleeves of his
jumper. His vacant eyes stare into the distance and a pool of urine has
collected beneath him. These disabled boys are among 100,000 children and young
people who live in Ukrainian orphanages - but many of them aren't even orphans.
The majority have families but end up living in these places due to a lack of
community services and support. Vasyl's family felt they had no choice but to
give him up. They had tried to get a diagnosis when he was very young - even
consulting a neurosurgeon from the UK - to help him get the support he needed. But
a poor health and social care system meant they struggled to provide for him at
home, as he has regular seizures and can become aggressive. In the end, when he
was five years old, the local authorities told them an institution was the best
place for him. "It's very hard to be a parent of a disabled child,"
Vasyl's mum, Maryna says as she gently holds her son's hand. She doesn't
question or seem perturbed by Vasyl being tied down. "I am proud to be a
Ukrainian, but we do need to have more support from the state. "If we
lived in the UK our son would probably live with us." She says the first
few years of visiting Vasyl were difficult - "we would come home in
tears" - but they have now learned to live with the situation.
(BBC footage
reveals abuse of disabled Ukrainians)
Ukraine has
the largest number of children living in institutions in Europe. They are
casualties of a Soviet-era system that made the process easy for parents to
give their child up to the state. There was, and still is, a belief by many in
Ukrainian society that disabled children receive better care in an institution.
Neighbouring
Romania has closed many of its orphanages since children were discovered living
in appalling conditions in the aftermath of the 1989 revolution. But in
Ukraine, before the Russian invasion in February, an estimated 250 children a
day were being signed up to a life in an institution. The network of nearly 700
facilities receives more than £100m a year from the state and employs 68,000
staff.
(This boy's protruding ribs show malnourishment)
The Ukrainian
government has promised a series of reforms over the past few years,
acknowledging that its system of institutionalisation needs to change. Until
the war led plans to grind to a halt, the government had begun moving thousands
of "orphans" into family-style group homes. But disabled people are
excluded from these plans. The Ukrainian government did not respond to a
request for further comment.
Eric Rosenthal, CEO of human rights group Disability Rights International (DRI), says disabled people are now commodities in "factories of disability". He has visited hundreds of these facilities and says he is always shocked and devastated by what he finds. We are shown around another institution, about an hour's drive from Vasyl's orphanage, where disabled men in their 20s and 30s live in children's cots. They rarely leave these cots, even to eat - staff spoon-feed them through the bars. Eric says one man's bony, warped ankles, and a young boy's protruding ribs, are a sign of "malnutrition over a lifetime". He says the war cannot be used as an excuse for such appalling care, as disabled people have been neglected for decades. Standing by the man, Eric says: "He is dying a slow death in this bed."
The wooden
beds are lined up next to each other, row after row. The brightly painted walls
jar with the bleakness of these young men's lives. They don't try to break free
- they are just desperate for some attention. In the next room, Oleh has been
lying in bed for decades. The 43-year-old was sent to this institution as a
young child.
(Oleh is even
fed lying down in his bed)
He has
cerebral palsy, a condition which affects movement and co-ordination. With the
right care, people with cerebral palsy are able to live full and independent
lives. Oleh understands everything about the world around him - and his face
lights up when he sees Halyna Kurylo, one of the investigators from DRI. He
recognises her from her last visit, seven years ago. Oleh greets her with a
warm smile and she introduces us. He expresses surprise and excitement when he
finds out we are journalists, smiling and asking our names. Holding his
emaciated arm, Halyna says it's clear from his poor physical condition that he
spends most of his time in bed. "I just am concerned about the potential
that he hasn't lived up to, because he has been in here for his whole
life," Halyna says.
Before the
war, Ukraine was already one of the poorest countries in Europe. Poverty and a
lack of support for struggling families contribute to a mindset that these
facilities are necessary. That's what the director of Oleh's institution,
Mykola Sukholytkyi, believes. "It is better for children with disabilities
to live here, rather than with their families," he says. "Instead of
being in dysfunctional families where they can be uncared for, without food,
here they can benefit from all the essentials." Eric says the billions of
dollars of international aid being pumped into Ukraine during the war should
also be used to shut down orphanages, support families to care for their
children and build a community that accepts disability. "We know
orphanages do not need to exist," he says. He fears some of the money
could be spent on maintaining institutions - and that after the war ends,
"the international attention to Ukraine will end and the orphanages will
continue as they are".
After a long
hot day in the yard of his orphanage, it's time for Vasyl to say goodbye to his
parents. He is still tied up. He is still screaming. Maryna says as she leaves
that she is "very grateful to the institution". But she adds:
"Our children with disabilities should not be hidden away from society,
behind these high walls."
^ This is so
disgusting and disheartening to see and know exist. I have known about these
kinds of horrific Institutions throughout Eastern Europe – especially Russia,
Belarus and Ukraine – for years now and it never gets easier to see or hear
about them or their Victims.
These
Institutions were a major problem before the War and the conditions in them
have only been made much worse since Russia’s War began. We need to make sure
Ukraine truly reforms their Institutional System so that the Disabled Children
and Adults can live like Human Beings and not like Animals. ^
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