Epilepsy Day
Purple Day is a global grassroots event formed with the
intention to increase worldwide awareness of epilepsy, and to dispel common
myths and fears of this neurological disorder. Further intentions of this
movement are to reduce the social stigmas commonly endured by many individuals
afflicted with the condition; to provide assurance and advocacy to those living
with epilepsy that they are not alone in their ongoing endurance; and to
initiate individuals living with the condition to take action in their
communities to achieve these aims. The day occurs annually on March 26.
Formation and history: The concept of Purple Day was initiated by a 9-year-old
named Cassidy Megan, and was motivated by her own struggle with epilepsy. The
Epilepsy Association of Nova Scotia helped to develop Cassidy's idea, and the
first Purple Day event was held on March 26, 2008, and is now known as the
Purple Day for Epilepsy campaign. In 2009, the New York-based Anita Kaufmann
Foundation and Epilepsy Association of Nova Scotia joined to launch Purple Day
internationally and increase the involvement of numerous organizations,
schools, businesses, politicians and celebrities around the world. On March 26,
2009 over 100,000 students, 95 workplaces and 116 politicians participated in
Purple Day. In March 2009, the official USA Purple Day Party launch was
organized by the Anita Kaufmann Foundation. Canadian Paul Shaffer of the Late
Show with David Letterman attended the official launch at Dylan's Candy Bar in
New York City. In March 2012, Purple Day
received the Royal Assent and became a legal day for epilepsy awareness in
Canada. In December 2015, Electronics retailer Dick Smith had arranged a major
corporate partnership with Epilepsy Action Australia to support Purple Day in
Australia with a $50,000 cash sponsorship, prizes and exclusive distribution of
Purple Day merchandise. A week prior to Purple Day celebrations in 2016, Dick
Smith was placed in receivership. Later, the Retail Food Group provided a
$50,000 donation to match Dick Smith's previously promised sponsorship.
Description: The Purple Day is held annually on March 26. Supporters are
encouraged to wear a purple-coloured item of clothing. Lavender (and thus its
color purple) is strongly associated with epilepsy because it has even been
proven to act as a central nervous system relaxant and anticonvulsant. The goal
of Purple Day is to increase general public awareness, to reduce the social
stigma endured by many individuals with the condition, and to empower
individuals living with epilepsy to take action in their communities. Purple Day is celebrated in Australia to fund
various epilepsy support organisations including Epilepsy Australia, Epilepsy
Queensland, and Epilepsy Foundation.
During the 2018 edition of Purple Day, the Epilepsy Care Alliance called
on the technology sector to push further innovations for the treatment for
epilepsy.
Guinness World Record: In 2017, a Guinness World Record was reached during Purple
Day by the Anita Kaufmann Foundation for the achievement of the largest ever
epilepsy training session.
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