From NYT/Yahoo:
“Ukraine’s Children With Special Needs Suffer the ‘Huge
Pressure’ of War”
(From left, Maryna Honcharova with her son Maksym at their
home in Kyiv, Ukraine, on Oct. 19, 2023.)
Maksym, 13, needs a life of stability and routines, but
almost two years of war in Ukraine have given him anything but that. The boy,
his adult brother and his mother fled their home city, Mariupol, under Russian
attack. His father was captured as a prisoner of war. And Maksym has had to
live with the sounds of bomb explosions and air raid sirens in Kyiv, where he
now lives. The therapist who once treated him in Mariupol has also become a
refugee.
Maksym, who has attention-deficit/hyperactivity disorder, or
ADHD, has struggled to cope and has been having anxiety attacks, said his
mother, Maryna Honcharova. He finds it hard to study, often becomes aggressive,
and doesn’t want to wake up in the morning, she said. “He screams and throws
things in the house,” she said. It often happens when he wants to do something
like ride the bicycle he left behind in Mariupol. “He remembers that and starts
screaming in anger that the Russians took everything from him,” his mother
said. The list includes his father, whom the family has not heard from since he
was taken prisoner by Russian forces well over a year ago.
Millions of families across Ukraine have had their lives
upended by the war, shattering the rhythms of daily routines. And for many
children with ADHD, autism and other special education needs, the trauma of the
war has often undermined them in unique ways, causing regressions in their
development, their families and experts say. “All children had at least some
decline in how they feel or study and children with special educational needs
in particular,” said Dmytro Vakulenko, a psychologist and co-founder of a
charity foundation, Mental Help 365. The children with special needs, he said,
“need stability, but the war ruins it, even if you are far away from the front
line.”
Almost half a million children have requested the help of
school psychologists on the specific issue of learning difficulties exacerbated
by the war, according to Ukraine’s Ministry of Education. Overall, the number
of children getting psychological support in schools has doubled since Russia’s
full-scale invasion of Ukraine in February last year. Five million students saw
school psychologists for help in 2022, compared to 2.5 million the year before,
the ministry said.
Schools are also operating under heavy constraints. By law,
only schools with bomb shelters can have full on-site lessons, meaning that
many students have to study online, or part time in the classroom. Maksym can
study in class only every other week, because his school’s bomb shelter can’t
fit all the children.
Mental Help 365, which provides therapeutic help for free,
says that 90% of the referrals it gets are for children with special needs. But
the country currently has a severe shortage of therapists and psychologists,
partly because so many of them, like millions of other Ukrainians, have left
the country as refugees, experts say. “The war puts a huge pressure on children
with special educational needs,” said a deputy education minister, Yevheniya
Smirnova. “There are studies showing that even the sounds of the sirens
influence children,” she said, adding, “With all this, we have an extreme
shortage of specialists.” Each school psychologist now serves about 600
children and their parents, Smirnova said.
Mental Help 365 received funding from UNICEF, the United
Nations’ children’s fund, and gathered a team of specialists to provide
psychological support to 1,657 children with special needs across the country.
The foundation says much more help is needed. Waiting times for treatment in
qualified private development centers can stretch to half a year or longer.
Sessions are also expensive, and often out of reach of people who have been
forced to flee their homes. This means that many families have to go to
charities for help. That undercuts the socialization that experts say is
important for children with neurodevelopmental disorders like ADHD. Being among
other children helps develop communication skills, including learning how to
speak and interact with others, they say.
Arina, a 12-year-old from Zaporizhzhia who has Asperger’s
syndrome and speech and language delay, can’t go to her school since it doesn’t
have a bomb shelter. “Online education for children like my daughter doesn’t
work at all,” said her mother, Victoria Porseva, 41. The family also can’t get
their daughter into a private school because of overcrowding among them. “She
gets sad that children do not want to be friends with her as they do not
understand her,” Porseva said. “Socialization is very important, but school is
closed.”
Roman, a 13-year-old boy with autism, also only has online
lessons. He, too, doesn’t want to study, said his mother, Olena Deina. She
added that he developed sleeping problems after the first aerial bombings of
the eastern Kharkiv region, where the family lives now, his mother said. “He is
a smart boy and studied just like all other kids before the war and now he has
no motivation at all, just tells me, ‘Mom, I don’t want to,’” she said. Maksym
first exhibited signs of aggression after he and his family were evacuated from
Mariupol, his mother said. “We had to pass through 20 Russian checkpoints,” she
said. “Maksym was very quiet all the way and only once we settled in and calmed
down, after a few days he took out on me all he had been holding inside.”
At first, Honcharova said she yelled back at her son. But
then she understood that “it makes everything only worse,” she said, causing
him to scream back “horrible words.” Back home in Mariupol, it was easier to
help Maksym together with her husband. “When he heard me losing control, he
would come in and take over, and I did the same,” Honcharova said. Maksym and
his mother together live in a one-bedroom home, where a Christmas tree from
last year still stands, unopened presents still beneath it. The presents were
for Maksym’s father, in the hopes that he would be home last Christmas. Honcharova
says she can’t find the strength to take the tree down or remove the gifts. Maksym
has a desk in his room, near a window, where he studies or attends online
class. Above his desk hangs a piece of paper which says, “I pray for you every
day, Dad.”
Back in Mariupol, the family had a therapist for Maksym who
helped him greatly, his mother said. He could read and write and made some
friends, giving the family hope for his development. “We thought we finally
managed to overcome this challenge,” she said, but added: “Now we have lost all
our achievements.” Mental Help 365 provided Maksym with 15 free sessions, but
the family can’t afford the cost of paying for a regular therapist. Before
leaving Mariupol, Honcharova said, Maksym had been able to get ready and go to
school on his own. “But now,” she said, “I can’t even wake him up.”
^ The Russian War is hurting so many innocent people –
especially Children and Children with Special Needs. ^
https://www.yahoo.com/news/ukraine-children-special-needs-suffer-181243883.html
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