From Katarzyna Łuc’s Facebook Post:
“Michal Myslicki”
Hi everyone. Many of us knows our
son Michal story about his and our fight to save his life . Michal has genetic,
very rare, illness called Batten, type CLN2 , the illness in simply words is
called children’s dementia as is taking step by step a life from the children.
The illness so far took always from our son the ability to independently walk ,
eat or freely talk , skills which Michal had just a couple years ago and now
they gone. Michal requires now help but he fight to keep and improve what he
can still do . One thing Michal still can do is to see even the illness
attacked his sight too, Michal is able to see clearly everything in 2,5 m
around him.
Soon our Little fighter got 7th
birthday ( 9/01) therefore we family asking everyone . Could you please, give
Michal a smile on his face by sending him a birthday card. Let’s see him that
there are people around there in this big world who are thinking of him and
wishing him well .
Thank you so much
Cards can be send on the
address below :
Michal Myslicki
24 Somerset Rd
Burton - on -Trent
DE15 9HX
United Kingdom
^ A friend in the UK I have known
for 20 years posted this message today on Facebook and after sharing it on my
Wall I then asked her to see if she could get permission from Michal’s family
so I could share it on here as well (and they said I could.) The only thing
from the above post that I added from the original was adding “United Kingdom”
to his address so people here in the US and around the world would know exactly
where to send the cards. So please take a moment to send Michal a Birthday card
(or even cards.) ^
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